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Full List of Documents Held

 

Number ResourceTitle Description Country Language DocumentPDF SubjectArea
1 ALSA 1 Living with ALS - What's it all about First of the ALSA manuals USA English http://www.mndallianceresources.org/documents/PDF/ALSA_manual1.pdf  
2 ALSA 2 Living with ALS - Coping with change Second ALSA Manual USA English http://www.mndallianceresources.org/documents/PDF/ALSA_manual2.pdf  
3 ALSA 3 Living with ALS - managing symptoms and treatment Third ALSA Manual USA English http://www.mndallianceresources.org/documents/PDF/ALSA_manual3.pdf  
4 ALSA 4 Living with ALS - functioning when you mobility is affected Fourth ALSA Manual USA English http://www.mndallianceresources.org/documents/PDF/ALSA_manual4.pdf  
5 ALSA 5 Living with ALS- adjusting to speech and swallowing difficulties Fifth ALSA Manual USA English http://www.mndallianceresources.org/documents/PDF/ALSA_manual5.pdf  
6 ALSA 6 Living with ALS-adapting to breathing changes Sixth ALSA Manual USA English http://www.mndallianceresources.org/documents/PDF/ALSA_manual6.pdf  
7 Les Turner ALS Foundation Resource Guide - I: Insurance, Financial and Legal Issues The Resource guide was developed to give patients and their families easy access to information and resources available to them in the local area as well as universal management tools USA English http://www.mndallianceresources.org/documents/PDF/SectionI_ InsuranceFinancialandLegalIssues.PDF  
8 Les Turner ALS Foundation Resource Guide - J: Genetic Issues in ALS The Resource guide was developed to give patients and their families easy access to information and resources available to them in the local area as well as universal management tools USA English http://www.mndallianceresources.org/documents/PDF/SectionJ_GeneticIssuesinALS.PDF  
9 Les Turner ALS Foundation Resource Guide -E: Patient Care The Resource guide was developed to give patients and their families easy access to information and resources available to them in the local area as well as universal management tools USA English http://www.mndallianceresources.org/documents/PDF/SectionE_PatientCare.PDF  
10 Les Turner ALS Foundation Resource Guide -H: Respiratory Care The Resource guide was developed to give patients and their families easy access to information and resources available to them in the local area as well as universal management tools USA English http://www.mndallianceresources.org/documents/PDF/SectionH_RespiratoryCare.PDF  
12 Les Turner ALS Foundation Resource Guide - Foreward The Resource guide was developed to give patients and their families easy access to information and resources available to them in the local area as well as universal management tools USA English http://www.mndallianceresources.org/documents/PDF/Foreward.PDF  
13 Les Turner ALS Foundation Resource Guide - A: ALS Overview The Resource guide was developed to give patients and their families easy access to information and resources available to them in the local area as well as universal management tools USA English http://www.mndallianceresources.org/documents/PDF/SectionA_ALSOverview.PDF  
14 Les Turner ALS Foundation Resource Guide - B: Medication and Drug Research The Resource guide was developed to give patients and their families easy access to information and resources available to them in the local area as well as universal management tools USA English http://www.mndallianceresources.org/documents/PDF/SectionB_Medications&DrugResearch.PDF  
15 Les Turner ALS Foundation Resource Guide - C: Resources for Daily Living C: Coping with ALS The Resource guide was developed to give patients and their families easy access to information and resources available to them in the local area as well as universal management tools USA English http://www.mndallianceresources.org/documents/PDF/SectionC_CopingwithALS.PDF  
16 Les Turner ALS Foundation Resource Guide - D: Resources for Daily Living The Resource guide was developed to give patients and their families easy access to information and resources available to them in the local area as well as universal management tools USA English http://www.mndallianceresources.org/documents/PDF/SectionD_ResourcesforDailyLiving.PDF  
17 Les Turner ALS Foundation Resource Guide - F: Nutritional Support The Resource guide was developed to give patients and their families easy access to information and resources available to them in the local area as well as universal management tools USA English http://www.mndallianceresources.org/documents/PDF/SectionF_ NutritionSupport.PDF  
18 Les Turner ALS Foundation Resource Guide - G: Speech The Resource guide was developed to give patients and their families easy access to information and resources available to them in the local area as well as universal management tools USA English http://www.mndallianceresources.org/documents/PDF/SectionG_Speech.PDF  
20 Boletin Cientifico No. 4 de Fundela Scientific Bulletin from Spain, part of a regular series. Spain Spanish http://www.mndallianceresources.org/documents/PDF/FUNDELA4.pdf  
21 Vivere con la SLA: Living with ALS 1. La Malattia - the disease La Malattia - the disease Italy Italian http://www.mndallianceresources.org/documents/PDF/La malattia.pdf  
22 Vivere con la SLA : Living with ALS 2. La vita quotidiana - the quality of life La vita quotidiana - the quality of life Italy Italian http://www.mndallianceresources.org/documents/PDF/La vita quotidiana.pdf  
23 Vivere con la SLA: Living with ALS 3. L'alimentazione e la comunicazione - Nutrition and Communication L'alimentazione e la comunicazione - Nutrition and Communication Italy Italian http://www.mndallianceresources.org/documents/PDF/L'alimentazione.pdf  
24 Vivere con la SLA: Living with ALS 4. La respirazione - Respiratory Care La respirazione - Respiratory Care Italy Italian http://www.mndallianceresources.org/documents/PDF/La respirazione.pdf  
25 Vivere con la SLA: Living with ALS 5. La presa in carico - Holistic care of medical and social needs La presa in carico - Holistic care of medical and social needs Italy Italian http://www.mndallianceresources.org/documents/PDF/La presa in carico.pdf  
26 Bengali Leaflet Information Leaflet in Bengali England Bengali http://www.mndallianceresources.org/documents/PDF/Leaf 1 bengali(England).pdf  
27 Cantonese Leaflet Information leaflet in Cantonese England Cantonese http://www.mndallianceresources.org/documents/PDF/cantonese(England).pdf  
28 Clothing Ideas Simple practical ideas for adapted clothing England English http://www.mndallianceresources.org/documents/PDF/Info01Clothing.pdf  
29 GP Booklet on MND Comprehensive booklet 21 pages for GP's England English http://www.mndallianceresources.org/documents/PDF/GPBooklet.pdf  
30 Head Supports Commercial Information and Prices for Head Supports in UK England English http://www.mndallianceresources.org/documents/PDF/InfoP1Headsupports.pdf  
31 Hindi Leaflet Information Leaflet in Hindi England Hindi http://www.mndallianceresources.org/documents/PDF/hindi.pdf  
32 Holiday Insurance Helpful facts on Holiday Insurance England English http://www.mndallianceresources.org/documents/PDF/Info04HolidayInsurance.pdf  
33 Holidays Advice on Contacts, Getting there, Finances, Useful Publications England English http://www.mndallianceresources.org/documents/PDF/Info03Holidays.pdf  
34 Impact of Familial MND Leaflet on background, coping mechanisms and Support England English http://www.mndallianceresources.org/documents/PDF/familialMND.pdf  
35 Kennedy's disease Summary of the Kennedy's disease variant England English http://www.mndallianceresources.org/documents/PDF/Info02Kennedys.pdf  
36 Living Will Proforma for Living Will document England English http://www.mndallianceresources.org/documents/PDF/LivingWill.pdf  
37 MND Statistics Statistics for MND in England and Wales England English http://www.mndallianceresources.org/documents/PDF/Info06Stats.pdf  
38 Motor Insurance Helpful facts on Motor Insurance England English http://www.mndallianceresources.org/documents/PDF/Info05MotorInsurance.pdf  
39 Riluzole: Questions and Answers Questions and answers about Riluzole (Rilutek) England English http://www.mndallianceresources.org/documents/PDF/Info09Rilutek.pdf  
40 Saliva Control Helpful Information for Saliva Control England English http://www.mndallianceresources.org/documents/PDF/InfoP3Saliva.pdf  
41 Urdu Leaflet Information leaflet in Urdu England Urdu http://www.mndallianceresources.org/documents/PDF/leaf1urdu2.pdf  
42 Communication Workshop and Exhibition: 11th International Symposium on ALS/MND Dec 2000 Report of the communication workshop at the 11th International Symposium (from poor quality photo original) Denmark English http://www.mndallianceresources.org/documents/PDF/Communicationworkshop.pdf  
43 The ALS Counsellor Scheme in Denmark Brochure on the Counsellor scheme. Illustrated. Denmark English http://www.mndallianceresources.org/documents/PDF/Denmarkcounsellors.pdf  
44 GP Booklet Australian booklet for General Practitioners Australia English http://www.mndallianceresources.org/documents/PDF/GPBooklet.pdf  
45 Guidelines for Predictive Testing Australian guideline for Predictive testing in familial MND Australia English http://www.mndallianceresources.org/documents/PDF/Guidelines.pdf  
46 Kennedy's Disease A guide to this MND variant Australia English http://www.mndallianceresources.org/documents/PDF/KennedysDiseaseAustralia.pdf  
47 MND More Facts Answers to frequent questions Australia English http://www.mndallianceresources.org/documents/PDF/MNDMoreFactsAustralia.pdf  
48 Some MND facts - Vietnamese A translation of the Australian "Some facts" document in Vietnamese Australia Vietnamese http://www.mndallianceresources.org/documents/PDF/Somefactsvietnamese.PDF  
49 Some MND facts -Chinese A translation of the Australian "Some facts" document in Chinese Australia Chinese http://www.mndallianceresources.org/documents/PDF/Somefactschinese.PDF  
50 Some MND facts - Greek A translation of the Australian "Some facts" document in Greek Australia Greek http://www.mndallianceresources.org/documents/PDF/Somefactsgreek.PDF  
51 Some MND facts - Italian A translation of the Australian "Some facts" document in Italian Australia Italian http://www.mndallianceresources.org/documents/PDF/Somefactsitalian.PDF  
52 Some MND facts - Turkish A translation of the Australian "Some facts" document in Turkish Australia Turkish http://www.mndallianceresources.org/documents/PDF/Somefactsturkish.PDF  
53 Asociation de lucha contra las enfermedades motoneuronales o ela en el Uruguay Uruguay Mondela brochure Uruguay Spanish http://www.mndallianceresources.org/documents/PDF/Drug TreatmentNeuromuscular diseases.pdf  
54 Drug treatment including anaesthesia in neuromuscular diseases Summary of drug interactions and cautions with anaesthesia in neuromuscular diseases Uruguay English http://www.mndallianceresources.org/documents/PDF/Drug TreatmentNeuromuscular diseases.pdf  
55 Advocacy Package Instructions given for contact with Members of Parliament during a constituency visit Canada English http://www.mndallianceresources.org/documents/PDF/ADVOCACYPACKAGEwebCanada.pdf Organisation
56 ALS Factsheet A new ALS factsheet from Canada in September 2003 Canada English http://www.mndallianceresources.org/documents/PDF/ALS FACTSHEET.pdf MND Facts
57 ALS, MS & MD: How do they differ? A document describing the differences between ALS, MS and Muscular Dystrophy Canada English http://www.mndallianceresources.org/documents/PDF/ALS,MS&MD.pdf MND Facts
58 Answers to Questions Frequently answered questions on ALS/MND Canada English http://www.mndallianceresources.org/documents/PDF/QUESTIONS.pdf MND Facts
59 Brochure What is ALS? Short 2 page brochure. Canada English http://www.mndallianceresources.org/documents/PDF/BROCHUREFINAL.pdf MND Facts
60 Canadian Manual - Living with ALS A large 111 page Manual for those living with ALS. It covers many different aspects of the disease, its care and reference materials. Canada English http://www.mndallianceresources.org/documents/PDF/CanadianManualLivingwithALS.pdf MND Facts
61 Canadian manual - Living with ALS A translation of the large Canadian manual into Mandarin Canada Mandarin http://www.mndallianceresources.org/documents/PDF/Manual for People Living with ALS - Chinese.pdf MND Facts
63 Caregiver First Steps First steps for families who have just learned of a diagnosis of ALS/MND Canada English http://www.mndallianceresources.org/documents/PDF/CAREGIVER FIRST STEPS.pdf Carers
64 Caregiver reducing stress Document to help caregivers reduce their own stress - finding ways to feel better Canada English http://www.mndallianceresources.org/documents/PDF/CAREGIVER REDUCING STRESS.pdf Carers
65 Caregiver Stress 10 signs of stress in caregivers Canada English http://www.mndallianceresources.org/documents/PDF/CAREGIVER STRESS.pdf Carers
66 Caregiver ways to help Ways to help families living with ALS Canada English http://www.mndallianceresources.org/documents/PDF/CAREGIVER WAYS TO HELP.pdf Carers
67 Faits saillants Canadian statistical facts from Dr Michael Strong Canada French http://www.mndallianceresources.org/documents/PDF/FAITS SAILLANTS.pdf MND Facts
68 Other Treatments Commentary on Alternative or Complementary therapies Canada English http://www.mndallianceresources.org/documents/PDF/OTHERTREATMENTS.pdf Alternative
69 Our Mission The Mission of the ALS Society of Canada Canada English http://www.mndallianceresources.org/documents/PDF/OURMISSION.pdf Organisation
70 Questions answered in French Brief answers to questions on ALS/MND Canada French http://www.mndallianceresources.org/documents/PDF/QUESTIONS F.pdf MND Facts
71 Statistics Statistical data on ALS Canada English http://www.mndallianceresources.org/documents/PDF/STATISTICS.pdf MND Facts
72 Volunteers Canadian code for Volunteer Involvement Canada English http://www.mndallianceresources.org/documents/PDF/ALSvolunteers1.pdf  
73 Chemins vers un meilleur traitment symptomatique des Maladies du motoneurone French translation of the document: Motor Neurone Disease: towards better care. By Forbes H Norris, Richard Smith, Eric Denys Switzerland French http://www.mndallianceresources.org/documents/PDF/LSLA.pdf  
74 La sclerose lateral amyotrophioque Booklet on ALS Switzerland French http://www.mndallianceresources.org/documents/PDF/ALS (Switzerland).pdf  
75 SLA Magazine - No 1 July 2001 Magazine produced by the Swiss ALS associations Switzerland French http://www.mndallianceresources.org/documents/PDF/Swissmagazine.pdf  
76 A guide to Benefits 2003 Infofact on the possible state benefits that someone with MND may be entitled to Scotland English http://www.mndallianceresources.org/documents/PDF/A Guide to Benefits2003.pdf  
77 Communicating with the MND Patient Advice on the best way to communicate with someone with MND Scotland English    
78 Complementary Therapies A guide to some common complementary therapies Scotland English    
79 Introduction to Complementary Therapies An introductory guide to some common complementary therapies Scotland English    
80 Creatine Infofact on Creatine Scotland English    
81 Familial MND Infofact giving some basic information on the Familial form of MND Scotland English    
82 Fundraising for all Some ideas to help with fundraising Scotland English    
83 Insurance 2003 Some basic information on getting insurance with MND Scotland English    
84 Legacy 2003 Information on leaving a legacy to the Association Scotland English    
85 MND and minerals 2003 Information on suppliments Scotland English    
86 Patient and Family Information Patient and family information Scotland English    
87 Video Collection List of Videos available from the Association Scotland English    
88 Recommended MND Websites List of recommended websites on MND Scotland English    
89 Nutrition and Dysphagia Basic information on Nutrition and swallowing with MND Scotland English    
90 PEG Basic information on PEG Scotland English    
91 Physiotherapy 2003 Basic information on physiotherapy and MND Scotland English    
92 Reading list 2003 Recommended medical reading list on MND Scotland English    
93 General Research Basic information on Research Scotland English    
94 Research Process Basic information on the process of carrying out research Scotland English    
95 Research Update 2003 Update on Research Scotland English    
96 Riluzole Basic information on Rilizole Scotland English    
97 Stem Cells and MND Basic information explaining stem cells Scotland English    
98 Tips 2003 Hand hints for those affected by MND Scotland English    
99 Vitamins and MND Basic information on Vitamins and MND Scotland English    
100 What is MND Basic information on MND Scotland English    

 

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Site created  by Dr Andrew Weir (Andrew@neurophysglas.org) and managed by Craig W F Stockton (craig.stockton@scotmnd.co.uk) at the Scottish MND Association.

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Last Update 18/03/2008